When Samuel Loses His Voice
There’s an old quote by Theodore Roosevelt that says “Nothing worth having comes easy.” I think any parent would agree there are few things in this world that quote applies to more than having children. This week, Samuel has had nearly 1400 seizures. We aren’t counting seizures while he sleeps, which means he has more than one seizure every minute of every hour he’s awake. This isn’t the first time he’s gotten this bad, but it is always heartbreaking to witness. This morning, I sat Samuel down at the table for his breakfast. Without help, nothing is easy for him. Eating two eggs will take all his concentration and around 40 minutes to accomplish. The duration of breakfast, he will be silently staring at his plate, enduring seizure after seizure while he tries to eat a small amount of food in between each. After I got him all set, I went about my other tasks of feeding t...